Ongoing Care

Bone Health-Osteology Clinic, CHEO

Date of Attestation Withdrawn Off Hospital System CHEO Address

401 Smyth Rd
Ottawa ON K1H 8L1
Canada

Fax Number 613-738-4236 Areas of care Skeletal/Growth Genetics Population Children Do you accept self referrals No Website(URL) https://www.cheo.on.ca/en/clinics-services-programs/bone-health-clinic.aspx Year Business Started 4.00 Services Provided Ongoing Care Region East Ottawa Keywords unexplained bone fragility , primary bone fragility , osteogenesis imperfecta (OI), syndromic bone fragility, connective tissue disorders, Ehlers-Danlos syndrome (EDS), Marfan syndrome, Loeys-Dietz syndrome (LDS) , skeletal dysplasias , fibrous dysplasia, hypophosphatasia, achondroplasia, Calcium and phosphate metabolism disorders , rickets , ectopic mineralization disorders , tumoral calcinosis, Ollier’s disease, fibrodysplasia ossificans progressive (FOP), high bone mass conditions, sclerosing bone disorders, osteopetrosis

McMaster Kidney Genetics Clinic

Date of Attestation Withdrawn Off Hospital System SJHS Address

50 Charlton Ave E
St. Joseph's Healthcare Hamilton
Hamilton ON L8N 4A6
Canada

Phone Number 905-522-1155 x33323 Fax Number 905-521-6153 Areas of care Renal Genetics Genetics Population Adults Do you accept self referrals No Website(URL) https://www.stjoes.ca/hospital-services/kidney-urinary-services/nephrology-outp… Year Business Started 4.00 Services Provided Ongoing Care Region West Hamilton Keywords chronic kidney disease (CKD), hereditary kidney disease, renal (kidney) disorders

Dr. Nadine Morrison Levy, Hôtel Dieu Hospital

Date of Attestation Withdrawn Off Hospital System KHSC Address

166 Brock St
Kingston ON K7L 5G2
Canada

Phone Number 613-544-3400 ext. 3133 Fax Number 613-544-3559 Areas of care Cancer Genetics Neurogenetics Renal Genetics Skin Genetics Population Children Do you accept self referrals No Year Business Started 4.00 Services Provided Ongoing Care Region East Kingston Keywords tuberous sclerosis complex, TSC

Dr. Lysa Boissé Lomax, Hôtel Dieu Hospital

Date of Attestation Withdrawn Off Hospital System KHSC Address

166 Brock St
Kingston ON K7L 5G2
Canada

Phone Number 613-549-6666 ext. 6242 Fax Number 613-548-2508 Areas of care Cancer Genetics Neurogenetics Renal Genetics Skin Genetics Population Adults Do you accept self referrals No Year Business Started 4.00 Services Provided Ongoing Care Region East Kingston Keywords tuberous sclerosis complex (TSC)

TSC Network, London Health Sciences Centre

Date of Attestation Withdrawn Off Hospital System LHSC Address

339 Windermere Rd
London ON N6A 5A5
Canada

Phone Number 519-663-3167 Fax Number 519-663-3449 Areas of care Cancer Genetics Neurogenetics Renal Genetics Skin Genetics Population Adults Do you accept self referrals No Website(URL) https://www.tscalliance.org/individuals-families/tsc-clinics/#international Year Business Started 4.00 Services Provided Ongoing Care Region West London Keywords tuberous sclerosis complex (TSC)

Toronto Hereditary Hemorrhagic Telangiectasia (HHT) Centre, St Michael’s Hospital

Date of Attestation Withdrawn Off Hospital System Unity Health Address

6th Floor Donnelly Wing
30 Bond St
Toronto ON M5B 1W8
Canada

Phone Number 416-864-6060 ext. 2407 Fax Number 416-864-5573 Areas of care Respiratory Do you accept self referrals No Website(URL) https://unityhealth.to/clinics-services/hereditary-hemorrhagic-telangiectasia-h… Year Business Started 4.00 Services Provided Ongoing Care Region Toronto Toronto Keywords hereditary hemorrhagic telangiectasia (HHT)

Sickle Cell/Thalassemia Clinic, CHEO

Date of Attestation Withdrawn Off Hospital System CHEO Address

Division Hematology/Oncology
401 Smyth Rd
Ottawa ON K1H 8L1
Canada

Phone Number 613-737-7600 Fax Number 613-738-4846 Areas of care Inherited Blood Disorders Genetics Population Children Do you accept self referrals No Website(URL) https://www.cheo.on.ca/en/clinics-services-programs/hematology-and-oncology-pro… Year Business Started 4.00 Services Provided Ongoing Care Region East Ottawa Keywords sickle cell disease, thalassemia

PKU (Phenylketonuria) Clinic, The Hospital for Sick Children

Date of Attestation Withdrawn Off Hospital System SickKids Address

Clinic 9, Burton Wing, Main Floor
555 University Ave
Toronto ON M5G 1X8
Canada

Phone Number 416-813-5753 Fax Number 416-813-4940 Areas of care Metabolic Genetics Genetics Population Children Do you accept self referrals No Website(URL) https://www.sickkids.ca/en/care-services/clinics/pku-phenylketonuria-clinic/ Year Business Started 4.00 Services Provided Ongoing Care Region Toronto Toronto Keywords phenylketonuria (PKU)

Primary Ciliary Dyskinesia Clinic, Hospital for Sick Children

Date of Attestation Withdrawn Off Hospital System SickKids Address

Unit 4A
555 University Ave
Toronto ON M5G 1X8
Canada

Phone Number 416-813-5826 Fax Number 416-813-5821 Areas of care Respiratory Genetics Population Children Do you accept self referrals No Website(URL) https://www.sickkids.ca/en/care-services/clinics/primary-ciliary-dyskinesia-cli… Year Business Started 4.00 Services Provided Ongoing Care Region Toronto Toronto Keywords primary ciliary dyskinesia (PCD)

Cystic Fibrosis Clinic, CHEO

Date of Attestation Withdrawn Off Hospital System CHEO Address

401 Smyth Rd
Ottawa ON K1H 8L1
Canada

Phone Number 613-737-7600 ext. 2214 Fax Number 613-738-4297 Areas of care Respiratory Genetics Population Children Do you accept self referrals No Website(URL) https://www.cheo.on.ca/en/clinics-services-programs/cystic-fibrosis-clinic.aspx Year Business Started 4.00 Services Provided Ongoing Care Region East Ottawa Keywords cystic fibrosis (CF)